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< Back Pediatric Autism Communication Therapy Improved Long-Term Child Outcomes Catherine Aldred Mar 27, 2023 Despite Autism being an enduring condition affecting 2% of people globally, evidenced intervention to improve the developmental impairments is limited. Paediatric Autism Communication Therapy (PACT) is currently the only scientifically evidenced early social communication intervention to demonstrate long-term improved child social communication outcomes into middle childhood. The PACT intervention has shown long-term improvement of autism core symptoms within randomised clinical trials (RCTs). PACT relatively low-intensity approach is referenced in UK national guidance for the new autism care pathway from pre- to post-diagnosis and education support. The evidence base Within the NICE recommendations for intervention and support for autistic development in early childhood, only two interventions met the evidential criteria set by NICE for inclusion.PACT was one of these (the other was JASPER). These two therapies were described as “social communication interventions” and their evidence was the basis for the NICE recommendation to services to consider social communication intervention for autism intervention. Both these therapies work with parents or teachers, and have evidence to improve autistic children’s social engagement, adaptation, communication, and in the case of PACT, autism symptoms. No other therapies were considered to have evidence of effectiveness. Recent independent reviews (e.g. Sandbank et al 2020) have reached similar conclusions. These findings should therefore guide evidenced commissioning of services in autism. How does Paediatric Autism Communication Therapy work? Parents or caregivers are guided through the six steps of PACT by a certified professional using video feedback techniques delivered in 12 alienate week sessions for six months and monthly maintenance sessions for a further six months. Caregivers send a video of a 10-minute interaction or play with their child to the therapist before each video feedback session. PACT builds on existing skills by sharing and analysing the best video clips identifying new strategies and techniques, summarised in an individual written programme for 30-minute daily practice between sessions. How is PACT different from other interventions? PACT has some unique distinguishing differences from other parent-mediated interventions. Firstly, it is the only intervention to use effective video- feedback methods with parents and caregivers and to use them within a modern developmental science-based model to optimise the social communication environment for the neurodivergent child. Secondly, PACT is the only intervention that has shown long-term sustained effectiveness in high-quality clinical trials in improving child autism outcomes for six years after the end of intervention. The Paediatric Autism Communication Therapy Trial An RCT of PACT delivered pre-school demonstrated significant endpoint effects to reduce symptom severity on ADOS Calibrated Severity Score (CSS) and ADOS-2 total algorithm score (Pickles et al. 2016; Carruthers et al. 2021). At follow-up, six years after the endpoint, treatment effects on child symptoms, adaptive outcomes, and child initiations with a parent were significantly sustained (Pickles et al. 2016). Furthermore, a mechanism study of the long-term impact identifies the ‘active processes’ by which interventions achieve their effects and provides insights into causal processes in development. PACT Trial Methods: Of 152 children randomised to receive PACT or treatment as usual between 2-5 years of age, 121 (79.6%) were followed 5-6 years after the endpoint at a mean age of 10.5 years. Assessors, blind to the intervention group, measured Autism Diagnostic Observation Scale Combined Severity Score (ADOS CSS) for child symptoms and Teacher Vineland (TVABS) for adaptive behaviour in school. PACT Trial Results: The treatment effect on child dyadic initiation with the caregiver (Dyadic Communication Measure for Autism, DCMA) was sustained through the follow-up period. Increased child initiation at the treatment midpoint mediated the majority (73%) of the treatment effect on follow-up ADOS CSS. A combination of midpoint child initiations and the direct effect of treatment also mediated the near- significant effect on follow-up TVABS. PACT Implementation The scalability of early evidence-based intervention is a global health priority. A not-for-profit social enterprise IMPACT CIC (Interaction Methods for Paediatric Autism Communication Therapy), established in 2017, disseminates PACT through a cascading ‘train the trainer’ model and implementation trials. Implementation trials test the feasibility, cultural acceptability and equal easy access to PACT in different contexts, including middle and low- economic settings. PACT video feedback methods are ideally adapted to online videoconference implementation. Pilot testing of online PACT has proved acceptable, feasible and accessible to families; further large-scale trials are in progress. Conclusions: Early social communication intervention can improve child social engagement with long-term generalised outcome effects on developmental. One thousand professionals have received PACT training, cascading PACT in twenty-six countries with six international implementation trials. Implications for autism services PACT is universally acceptable and feasible for implementation in different countries and cultures, enhancing autism care pathways from early identification and pre-diagnostic to post-diagnostic and education support. PACT training is available for professionals with appropriate training and qualifications and a minimum of two years of experience in autism. Please visit the website www.pacttraining.co.uk for more information on PACT training. Previous Next

Frequently asked questions. How is ACN connected to the neurodiversity movement? ACN identifies as an ally of the neurodiversity movement, promoting empowerment, connection, and communication within the autism community. Our staff engages in regular training regarding implementation of neurodiversity-affirming, strengths-based practices, and many of us have lived experience of having a loved one on the spectrum. Who leads ACN and provides its services? ACN is led by professionals and a dedicated board, many of whom are parents or family members of neurodivergent individuals, ensuring first-hand understanding of caregivers' challenges. How can I get involved with ACN? You can get involved with ACN by attending events, participating in programs, volunteering, or making a donation to support our mission. How can families benefit from ACN's services? At ACN, we empower the family & caregivers to be the best providers they can be. We help guide you and help you show up for your autistic loved one. Families can also benefit from ACN's services by gaining access to early diagnosis, therapies, resources, support groups, and empowerment programs. Is ACN's assistance available in Spanish? (hablamos español?) Yes, ACN provides assessments, therapies, and resources in both Spanish and English to meet the diverse needs of families. Sí, ACN brinda evaluaciones, terapias y recursos tanto en español como en inglés para satisfacer las diversas necesidades de las familias. How can I support ACN's mission? Tell your friends about us and the work we are doing. You can also support ACN's mission by making donations to help us continue providing high-quality services and resources to the autism community. How can I become a volunteer for ACN? Just reach out! Send us an e-mail to info@acn-sa.org. We've got great things coming up and can always use your help! Does ACN collaborate with other organizations? Yes, quite a few actually! ACN prioritizes forming partnerships and alliances with like-minded organizations to create a broader network of support for the autistic community. Reach out if you think we might be a good match for you. How does ACN contribute to the San Antonio community? ACN strives to make the San Antonio community more accessible and supportive for individuals with autism and their caregivers. Our new inner west side campus is here to serve, and we welcome everyone to take part in raising the bar for autism care and inclusivity in South Texas. How does ACN promote autism awareness and acceptance? ACN's programs, services, and events all work towards raising awareness and promoting acceptance of autism within the community. We encourage aunts, uncles, grandparents, teachers, and first responders, everyone to join our herd and create a circle of protection around the autistic individuals that make our world so special. How can I stay informed about ACN's events and programs? You can stay informed about ACN's events and programs by attending Coffee and Connections sessions, signing up for the blog, subscribing to our emails, following us on social media, or checking out our events page. What is the difference between Pre-K and ECSE? ECSE stands for Early Childhood Special Education. It is a program for children 3-6 years old that have received an educational evaluation and qualify for special education services to help transition into the school setting. Pre-K is typically provided to children 3-4 years old. Program admission is based on a variety of factors. If you are interested in your child attending either of these programs, you should speak to your local school district. Does my child have to be toilet-trained to go to school? No. When a child with developmental differences qualifies through educational testing for a classroom called Early Childhood Special Education (ECSE), they do not need to be toilet-trained to attend. In fact, goals related to your child’s education will be made specifically for them based on this educational testing, and often, toilet-training is one of those goals. This means that the school staff will partner with you to help get your child toilet trained as part of their individual education plan (IEP). Please note that the ECSE classroom is different than a Pre-K 3 or Pre-K 4 classroom because it falls under the special education umbrella, and children must qualify for the program through individualized educational evaluation. My child has a school diagnosis, do they need a medical diagnosis as well? Your child will benefit from having both a school diagnosis, which is called educational eligibility, and a confirmed medical diagnosis of autism. Educational eligibility will assure that your child is given the correct variety and intensity of educationally-focused therapies and supports, while a medical diagnosis helps your child gain further access to clinical supports that might be recommended. It is important to note that children do not have to wait for a medical diagnosis of autism to gain access to therapy, as even a determination of developmental or speech-language delay might open the doors for your child to begin intervention as early as possible. How do I know if my child has been medically diagnosed? At Autism Community Network, you will receive direct feedback from the doctor and other members of the diagnostic team at the end of your visit. During this conversation, your child’s unique profile will be discussed at length, along with recommendations for support, and you will have ample opportunity to ask any questions you may have. When you receive the full report, this diagnosis will be stated in the document, and you will have the opportunity to schedule a follow-up session with our LCSW to review results and any further questions you may have. How are ACN's evaluations conducted? ACN offers strengths-based autism screenings and diagnostic evaluations tailored to each family's needs, available in both telehealth and in-person formats. Does ACN provide speech therapy services? ACN offers specialized, evidence-based social-communication therapies. What educational programs does ACN offer? ACN offers training, educational programs, and learning opportunities, such as Coffee and Connections sessions, corporate trainings, and professional conferences. What is the goal of ACN's autism screenings? ACN's autism screenings aim to identify developmental differences and provide immediate feedback and recommendations for families. How does ACN's diagnostic evaluation process work? ACN offers various diagnostic tracks and collaborates with a team of specialists to provide comprehensive evaluations tailored to each child. Usually, it starts with a screening request that is sent over from your child's doctor. My child got a diagnosis of autism from a different agency, but I didn't like the testing; can you re-test him/her? Unfortunately, at this time, we do not offer re-evaluations once a child receives an autism diagnosis. Do you provide ABA therapy? Autism Community Network provides rigorously tested, developmental-relational, parent-mediated therapies, proven to support enhancements in child social-communicative functioning that generalizes to varied environments and interactive partners and sustains over time. ACN does not offer ABA therapy and respects each family and individual’s right to explore alternative, science-backed interventions that align with their preferences and values. Does ACN provide OT/ST/PT? Autism Community Network does not provide traditional OT or ST services; however, our specialized services are completed by occupational therapists and speech-language pathologists trained to fidelity in their various autism-specific approaches that can therefore be billed as OT and ST. We do not provide PT at this time. My child is diagnosed. Do you offer parent training classes? Yes! We offer group classes and individual therapies to support parent education. Please see our offerings in the Services section of this website. My child is diagnosed. Do you offer respite care? While Autism Community Network does not provide respite care, we are officing with an organization that does! Please see this website about Special Reach for details. https://www.specialreach.com/ My child is diagnosed with a different provider. Can we receive services within your clinic? Absolutely! As a matter of fact, we often hear from families diagnosed elsewhere that they wish they would have known about all our offerings sooner. We would love for your family to be a part of our herd! What is Autism? Autism is a difference in development which may impact communication, the sensory system, relationships, and social interactions. Autism is lifelong and it is of critical importance to address as early as possible due to the malleability of the brain during infancy and early childhood. What are some common signs of autism? Common signs of autism may include challenges in social interaction, communication difficulties, repetitive behaviors, and sensitivity to sensory stimuli. Is there a cure for autism? There is no known cure for autism, but early intervention and various therapies can help individuals with autism develop skills and improve their overall quality of life. Can individuals with autism live independent lives? Many individuals with autism can lead independent lives with appropriate support, therapy, and interventions tailored to their needs. Are boys diagnosed more than girls? This is a compelling question. While data suggests more boys are diagnosed than girls, girls often present quite differently which requires a very seasoned eye to identify markers typically present in the female phenotype. If you are concerned about your daughter, please reach out to info@acn-sa.com Is autism a lifelong condition? Yes, autism is typically a lifelong condition, but early intervention and appropriate support can greatly improve an individual's quality of life. How common is autism? Autism affects approximately 1 in 44 children in the United States, making it a relatively common developmental disorder. Are there different levels of autism severity? Yes, autism severity differs based on the level of support the individual requires. The technical name for autism is Autism Spectrum Disorder (ASD) because its signs and symptoms vary greatly along a spectrum. My child is sensitive to noises. Does that mean they have autism? No, although most autistic people people experience sensory processing differences, there are also many people with sensory processing differences who are not autistic. My child is showing characteristics of autism. Where do I begin? Come see us. We can schedule your family for a screener where we can help discern your child’s profile and recommend further testing should the clinician deem it necessary. If you have found this website, you are already on your way! We can provide you with many other helpful resources once we get connected. Still can't find what you're looking for? Write us a short message and well get back to you right away! First Name Last Name Email Write a message Thanks for submitting! Submit

< Back CASE MANAGEMENT & FAMILY SERVICES About Case Management Services Our case management and family services resources provide information on support services available to individuals with autism and their families. These resources can help families navigate the often-complicated system of autism services and find the help they need. Also, inquire about our in-house autism case management resources! CASE MANAGEMENT & FAMILY SERVICES AACOG, Alamo Local Authority for IDD 210.830.5020 Web: www.aacog.com 8700 Tesoro Dr., Ste. 800, SA TX 78217 Provides Eligibility Determination (autism is a related condition), service coordination for General Revenue Services and Texas Home Living program, enrollment into the Home and Community-Based services program, In-Home Family Support Program and admissions into Intermediate Care Facilities-MR and State Schools Any Baby Can of San Antonio 210.227.0170 Web: www.anybabycansa.org 217 Howard St. San Antonio, TX 78212 Provides case management, to families who have a child aged from newborn to age of 17. Provides crisis assistance, referrals, small group counseling, individual counseling, financial assistance and parent education for children with autism. ARC of San Antonio 210.490.4300 Web: www.arc-sa.org 13430 West Ave. San Antonio, TX 78216 FAMILY SUPPORT SERVICES: Provides a social service “home” for families and caregivers of individuals with intellectual or other developmental disabilities. Support Service Coordinators will help families connect to programs and find resources. Eligibility: all ages, no income restrictions, serving Bexar County and surrounding communities. COMMUNITY SUPPORTS CASE MANAGEMENT PROGRAM (CSCM): Provides comprehensive case management services for families who have a child/young adult(s) with special health care needs. Eligibility: Ages 3-21 years. Non- Medicaid eligible. Bexar and surrounding counties. COMMUNITY LIVING ASSISTANCE & SUPPORT SERVICES (CLASS): Contact Yolanda Fuentes, Director of CLASS Case Management at yfuentes@arc-sa.org . Provides individuals with disabilities access to the resources they need to live and work as independently as possible in the community. Case Managers coordinate services including provider care, specialized therapies, adaptive aids, minor home modifications and respite care. Eligibility: Must be actively enrolled in the CLASS Medicaid Waiver Program. Center for Healthcare Services - CHCS-ECI, formerly PACES 210.261.3300 Web: www.chcsbc.org 5802 S. Presa, San Antonio, TX 78223 O ff ering a variety of services for parents with children under the age of 3, who are experiencing developmental delays. Services include case management, family centered services, activities in familiar settings, and more. Mo family is turned away because they cannot a ff ord to pay. Free services for children on Medicaid. Other services provided based on family size and adjusted income. Previous Next

< Back CHILDCARE About Childcare Services Our childcare resources provide information on finding high-quality childcare options for individuals with autism. These resources can help families find providers who are trained and equipped to support children with autism and provide them with the care they need. CHILDCARE PROVIDERS Brightstar Kid Care 210.377.3355 Web: www.brightstarcare.com/san-antonio-north-central-/child-care/ 7410 Blanco RD, Ste. 200, SA TX 78216 We offer flexible sick-day childcare and sitter services and pediatric home care; including a wide range of home care services for children with special needs. Our clinical caregivers are experts in well-baby and newborn care. Our in-hospital companions give family caregivers a respite break and peace of mind that their child is being looked after when in the hospital. Brighton Center 210.826.4492 Web: www.brightonsa.org 14207 Higgins RD, SA TX 78217 Bright Beginnings Child Care Center: NAEYC Accredited Center, curriculum is designed to meet the needs of each child based on his/her developmental level; ages 6 weeks to 5 years. Family Endeavors 210.208.5700 Web: www.familyendeavors.org 535 Bandera RD, SA TX 78228 This agency provides a myriad of programs including Fairweather Programs; Supportive housing; job training; employment; case management; and supportive services provided to individuals and mothers with disabilities and their children. Children & Youth Services; Licensed after school programs; childcare & learning centers; and summer day camps. Joy Learning Center - Child Care 210.736.2552 250 Sherwood Dr, SA TX 78201 JLC provides quality childcare for children diagnosed with Autism between the ages of 18 mos. - 12 yrs. Specialized in early learning intervention and individualized instruction for children with language and learning disabilities. Low Page 39 staff to child ratio and staff holds degrees in occupational and speech therapy; psychology and ABA. Mi CASA 210.561.7660 Web: www.micasachildcenter.com 8601 Cinnamon Creek, SA TX 78240 A day program for school age students, from 6:30 a.m. till 6:30 p.m. Respite Care of San Antonio – Daycare 210.737.1212 Web: www.respitecaresa.org Christ Episcopal Church, 605 Belknap Pl., SA, TX 78212 Families may bring their children (6 wks. To 5 yrs.) with special needs and complex medical conditions, Monday - Friday from 7:30pm – 4pm (extended care 4pm -6pm); non-disabled siblings (up to the age of 5) welcome. Study Hall Learning Center 210.615.0565 Web: www.studyhalldaycare.com Multiple Locations Summit Christian Center 210.402.0565 Web: www.summitsa.com/ministries 2575 Marshall RD, SA TX 78259 Summit offers many different programs dependent upon the age of your child. They offer a nursery for ages 2 months to 3 years; a King’s Court - ages 4 to 1st grade; Elevate - grades 2nd through 5th; Emerge - grades 6th through 8th; The X - grades 9th through 12th and other young adults programs. They also offer divorce care for children of divorced parents; which includes a program to help kids deal with the hurt caused by the separation; provides special needs Sunday school classes with a trained staff. Also offers Parents and Challenges Support Group and field trips for children ages 2 to 18. CHILDCARE REFERRAL & RESOURCES City of S.A. - Head Start 210.206.5500 Web: saheadstart.org 1227 Brady Blvd, SA, TX 78207 Family Service Association - Smart Start 210.299.2400 Web: www.family-service.org E-Mail: support@family-service.org 702 San Pedro, SA, TX 78212 Provides consultants who assist with connections to local child care resources and community agencies, as well as national agencies and information; SMART START Connections is a network member of the National and Texas Association of Child Care Resource and Referral Association (NACCRRA and TACCRRA) and the national Child Care Aware system. Basic services are no charge. Online Child Care Search Web Only Web: https://www.dfps.state.tx.us/Child_Care/Search_Texas_Child_Care/ Spectrum Sitters, LLC 512.777.2676 Web: www.Spectrum-Sitters.com E-Mail: contact@spectrum-sitters.com Serving Central Texas; Texas Association of Child Care Resource Specialized Sitters for Special needs children. Provide both on call sitters, as well as long term sitter referrals. Texas Association of Child Care Resource and Referral Agencies 210.299.2424 Web: www.taccrra.net 702 San Pedro Ave., SA TX 78212 Assists in locating a network of childcare resource and referral agencies serving communities throughout Texas; includes help for childcare for children with special needs. Texas Department of Family & Protective Services 210.333.2004 Web: www.txchildcaresearch.org Provides an online search of all Texas licensed facilities including center-based childcare and home-based childcare. Database is searchable by location and programs provided, such as special needs care, acceptance of childcare subsidies and transportation. Inspection reports of facilities available online. Previous Next

< Back We Should Tell Children They Are Autistic As Soon As Possible Shannon Des Roches Rosa Jun 18, 2022 Thinking Person’s Guide to Autism (TPGA): Why did you decide to do research on the “right time” for parents to tell autistic children they’re autistic? Bella Kofner : I wanted to do the research because parents may not know when is it the “right time” to tell their children that they are autistic. Parents may be struggling on how to start a conversation about how to tell their children about their autism, and when to tell. I also wanted to do the research because this reminds me of my own experiences as an autistic person. I was diagnosed at the age of three with autism, and I was first told about my autism when I was ten years old. I did not really think too much of my autism until I got older. When I got older, I reflected on my life experiences and my autism. After taking the time to reflect, I feel very comfortable with my autism to the point that I tell people about me being autistic. TPGA: Did the results of your research surprise you in any specific ways, or were the results along the lines of what you expected? (Or was it a mixture of both?) Kofner : It was a mixture of both for the results. What surprised me was that participants who learned about their autism later on in their life had more positive emotions when they first learned about their autism, which contradicts the second hypothesis about learning one’s autism at a younger age would be associated with positive emotions about autism in adulthood. One result that aligned with what I expected was that the findings supported the first hypothesis that learning one’s autism at a younger age was associated with heightened well-being and quality of life (QoL). TPGA: Why is it important for autistic kids to know that they’re autistic, according to your respondents? And in your personal opinion? Kofner : In my personal opinion, it is important for autistic kids to know that they are autistic early on because this would allow children to start developing as people while taking their time to understand who they are as a person with autism. The more that parents wait longer to tell their autistic kids about their autism, the more likely that children will have negative feelings about themselves as they get older. When children are told early on about their autism, this will lead to children gaining self-awareness and feeling confidence in themselves which can have a positive impact on their well-being and quality of life as adults. Based on the responses of participants, there are examples of why it is vital for autistic kids to know about their autism at a younger age. One participant, who first learned about their autism at the age of eight, said “I suppose it helped me better understand why I felt and acted different from everyone else.” The same participant said about their feelings about their autism now ” I am proud about my identity. As someone who also researches autism, I have a greater appreciation toward learning more about my own identity and how that differs from others.” This shows how the participants express positive emotions from when they first learned about their autism, to feelings about their autism now. TPGA: What are your primary recommendations for parents, when it comes to how and when to tell kids that they’re autistic? Kofner : When it comes to how, parents should tell their children in a comfortable and safe environment for the child to be in. Parents should tell their children by using language that the child can understand. Parents have to take into consideration the child’s developmental level and how to explain autism to their child in a way that allows the child to understand themselves. Parents should not assume that the child is going to react this way or that way, so parents have to know how to respond to the child’s reaction in ways that show that it is ok for the child to feel this reaction and know that they are there for the child to answer questions or to talk about anything. When it comes to when, it is personally up to the parents to decide about telling their children about their autism. But, parents should not delay in telling their child about their autism because the child may question who they are and what their life was like in adulthood if they do not tell their children early on. So, it is better for children to be told early on about their autism so that children can grow as individuals, and understand themselves as they go through life as autistic people. TPGA: How were your survey participants selected? Do you think the demographic profile of the participants affect the results in any ways? Kofner : Participants were recruited through social media or at universities. Participants that were interested emailed the third author and received a link to do an online survey in Qualtrics. Students that were enrolled in any institution of higher education were allowed to participate. A total of 78 autistic students were the participants in the study. The demographics did not affect the results in any way. TPGA: Most of the researchers on this study were themselves autistic. How do you think that having autistic researchers affects the direction and focus of autism research? Kofner : Having autistic researchers is very important in autism research because it is important for all voices, including autistic people , to be represented in autism research. If autism research does not incorporate autistic researchers, then people may struggle to understand autism and topics in autism research. This study was the first study that demonstrates that learning one’s autism at a younger age may have positive impacts on emotional health among autistic university students. This study is an example of how the perspectives of autistic people are vital because how can people be educated in autism and tell their children about autism if there are no autistic researchers. Over time, the knowledge of autism has grown in society and people are accepting of autism. So, it is up to us to encourage people to collaborate with people with autism in autism research. By including autistic researchers in autism research, we can bring awareness about topics in autism research and we can learn in the process on why autistic researchers play a vital role in autism research. TPGA: Did you have any self-identified autistics among your survey respondents (meaning they were never formally diagnosed, or their parents never told them but they figured it out)? If not, do you plan to do research in this area? Kofner : 14.1% of participants found out about their autism on their own. That means that they were not told by their parents about their autism and learned from other sources which include the media and autistic people. TPGA: Is this study going to lead to more research about the timing of autism diagnoses discussions between parents and autistic children, and if so, what are your goals for that research? Kofner : This study can start to address concerns that parents have reported in prior literature in terms of how to start a conversation with their child about their autism. Future research should focus on asking participants when they were diagnosed and when they learned they were autistic to examine if the timing of the diagnosis itself or potential delays between being diagnosed and learning one’s autism impact outcomes in adulthood. Previous Next

< Back RESPITE SERVICES About Respite Services Sometimes you need a break, we totally get it! Respite services provide short-term relief for families and caregivers of individuals with autism. Our resource library provides information on respite care options, including in-home and out-of-home services. PARENT’S NIGHT OUT / DAY RESPITE Artful Start Web: www.artfulstart.org E-Mail: artfulstart@gmail.com Artful Start organizes art programs for children with special needs throughout the community. Programs are run by trained volunteers with an adaptable curriculum to allow all participants to reach their maximum potential. Children’s Association for Maximum Potential (CAMP) —Teen and Adult Day Adventure 210.671.8112 Web: www.campcamp.org E-Mail: michelle.elble@campcamp.org Physical Address: 2525 Ladd St., Bldg. 3850, Lackland Air Force Base, TX 78236 Mailing Address: P.O. Box 27086, SA TX 78227 A supervised social program for teens and young adults with developmental disabilities, ages 14-40 (with no aggressive behavior); scheduled for one Saturday per month. Activities include dinner, movies, sporting events, concerts, and dances; teens may bring a date. Respite Club membership required. Mission Road Ministries - Mom’s Morning Out 210.334.2437 Web: missionroadministries.org/programs/children/moms-morning-out E-Mail: lbutler@mrmsat.org 8706 Mission Rd, SA TX 78214 Mission Road Ministries offers Mom’s Morning Out *each month. The program allows parents with children with intellectual developmental disabilities (IDD) some much deserved free time - even “me” time. This fun and important program is available to families living in San Antonio & Bexar County caring for a child with IDD. Tuition cost is $40/ child for 4 hours of care and must be between the ages of 6 thru 17. The program is from 9 AM - 1 PM. Program runs 1 Saturday per month and dates are on the website. Respite Care of San Antonio 210.737.1212 Web: www.respitecaresa.org 605 Belknap Pl., SA TX 78212 Families may bring their children (6 wks. To 17 yrs.) with special needs and medical complex conditions. Monday - Friday from 7:30am –6pm; non-disabled siblings (up to the age of 12) welcome. San Antonio Busy Bodies 210.545.2840 Web: https://www.sabusybodies.org/programs.html E-Mail: info@sabusybodies.org 11985 Starcrest Dr, SA TX 78247 Busy bodies is a learning center providing services for children including the development of fine and gross motor skills; balance; ocular motor control; attention span; self-esteem; and social skills. To qualify for the program; the child must attend an initial assessment for $200; in which the doctors determine what kind of treatment the child requires. The following therapy sessions are $35/hour. Busy bodies accepts some commercial insurance; but mainly private pay. Special Reach Inc 210.784.7478 Web: https://www.specialreach.com/ 6851 Citizens Pkwy suite #220, San Antonio TX 78229 Party night is a Special Reach’s unique twist on Parent’s night out. It’s a great opportunity to develop social skills and meet other children aged 6-18. Additional summer program locations are available as well as new programs such as San Antonio Adventure Program. RESPITE CARE Mission Road Ministries - Respite Care 210.334.2437 Web: https://missionroadministries.org/lets-talk 8706 Mission RD, SA TX 78214 Children with Intellectual Disabilities have lived on the campus of Mission Road for nearly 65 years. We know what it takes to care for children who require individualized attention and constant supervision. At Mission Road we can provide your child with a weekend of fun and activity; while giving you the rest and relief you deserve. Your child will spend the weekend in one of our 5 cottages; interacting and playing with other children; all under the watchful eye of trained residential care professionals. A gymnasium; basketball court; sensory room; playground and Open Air Pavilion provide the backdrop for stimulating activities. A menu of meals and snacks carefully designed by our licensed dietitian are served family style. Our on- campus Health Care clinic dispenses any medications your child may need during their stay. Maxim Healthcare Services 210.341.3800 Web: https://www.maximhealthcare.com/ E-Mail: SanAntonioTX@maxhealth.com 7550 IH 10 West, Ste. 1001, SA TX 78229 Contact Person: Angela Barker, Business Development Manager Provides Private Duty Nursing, Companion services, respite care; Insurances accepted: Traditional Medicaid, Superior Medicaid, AmeriGroup, Molina, Blue Cross Blue Shield, Aetna, United Health Care, TriCare, Humana Military, Cigna, Care Centrix and most other insurances. Please, feel free to call the office should you need help with a funding source. Ramiro P. Estrada Respite Station - Children’s Hospital of San Antonio....210.704.3497 519 W. Houston, SA TX 78207 A respite program for families of children with developmental disabilities and multiple medical conditions; the program is available to children from birth to 18 years of age who require skilled car and medical support services. Respite Care of San Antonio 210.737.1212 Web: www.respitecaresa.org Davidson Respite House (DRH), 605 Belknap Place, SA TX 78212 Emergency/crisis facility dedicated to caring for children with special needs and complex medical conditions. Children may be placed at the DRH by their families so that they may attend to a crisis. Children are placed by the Texas Department of Family & Protective Services as a result of abuse or neglect; cares for children ages 0 to 17 years of age. The shelter is open 365 days per year, 24 hours per day. Previous Next

< Back Sound and vision: How San Antonio is building inclusivity in arts and culture Nicholas Frank Dec 20, 2023 Sound and vision: How San Antonio is building inclusivity in arts and culture Anyone seeing the Classical Music Institute ’s presentation of Vivaldi’s Four Seasons the morning of Nov. 1 might have thought they were at one of the ensemble’s rehearsals. The atmosphere was casual, audience members chatted, snacked and sipped from sippy cups, napped under blankets, played with phones and tablets, got up and walked the hallways of the Tobin Center for the Performing Arts , fidgeted with toys, leaned in to listen to concertmaster Francisco Fullana’s comments on what to listen for in upcoming musical passages and otherwise came and went as they pleased. The public event was not a rehearsal, but the latest Valero Sensory Friendly Program performance geared toward audiences sensitive to the loud noises, bright lights, large crowds and extended sitting times typical of conventional performances. The keys to the series are inclusion and accessibility, said Kimberly Stephenson, the Tobin Center’s director of education. “It’s just a very open and welcoming environment,” Stephenson said. “We are wanting to expose everyone to the beauty and the power of the arts.” For anyone Sensory-friendly events are primarily designed to accommodate those with autism spectrum disorder who might have difficulties adjusting behaviors to social situations or communicating their needs effectively. Valero series accommodations include limiting the audience to half the standard size, keeping house lights on throughout the performance — which is limited to a one-hour duration — and encouraging patrons to talk or vocalize and move around freely. Noise levels are kept consistent so as not to startle or overwhelm with sound. For the Classical Music Institute sensory-friendly performance, Fullana frequently turned to the audience and spoke about the music they were about to hear, saying they should listen for birdsong-like passages played by the violin section and imagine a festive garden party signaled by Vivaldi’s famous melody. Jacqueline Ha brought her 2-year-old son Tiago to the performance in part because “he has a very keen ear for music.” The Tobin Center welcomes anyone to these free public events, and Ha and her partner recognize that though Tiago has not been diagnosed as on the autism spectrum, he has a short attention span and displays sensitivity to bustling crowds and loud sounds. The Four Seasons concert was the second Tobin Center sensory-friendly event they’ve attended, and Ha said they appreciate the accommodating environment. “Just the fact that we have exposure to performances at the Tobin is something that we’re really grateful for, as far as learning what parameters are conducive to him as a little being exploring himself,” she said. An invisible disability Other arts and culture organizations in San Antonio have offered sensory-friendly accommodations and specially designed events with similar modifications, in the name of inclusivity for audiences of all abilities. The San Antonio Zoo held a sensory-friendly version of its annual holiday Zoo Lights extravaganza on Nov. 20. What is normally billed as “miles of dazzling lights, festive music, and whimsical displays” was dialed down, tailored for those with sensory sensitivities. Music volume was muted by 80%, laser strobe lights were removed, other bright lights were dimmed and more sensory-friendly implement bags were made available. As with other institutions, the bags are available for free during visits at the information desk. Alex Rodriguez, the Zoo’s manager of diversity, equity and inclusion, described sensory sensitivity as “an invisible disability” that is more common than generally realized. She said thatwhen sensitivities beyond the autism spectrum are taken into account, including military veterans with post-traumatic stress disorder, individuals with dementia and even neurotypical adults who can become overwhelmed in overstimulating environments, “every community you are in, every family or social dynamic that you’re in, chances are somebody in that group has this [condition]” in one form or another. Everyone means everyone The Valero series at the Tobin defines its mission as “equitable services for the creative arts to promote justice, inclusion, and empowerment for all.” In a similar spirit, The Public Theater of San Antonio took Tiny Tim literally when the character intones “God Bless us, everyone” at the end of the Charles Dickens holiday classic A Christmas Carol . The theater company’s version of the play that ran Dec. 1-17 integrated deaf and hard-of-hearing actors, with a script adapted to shift between moments of speaking and moments communicated only through American Sign Language (ASL). The reworked script by Tim Hedgepeth and Anthony Ciaravino features a Scrooge, played by hearing actor John O’Neill, who learned sign language as a youth in love with a deaf woman and is moved to draw on his past to communicate with Tiny Tim, played by deaf actor Josiah Sammy Esqueda. The staging of the play aims to be as inclusive as possible and might help lend insight to hearing audiences into how deaf people communicate. “This production includes spoken word, moments of ASL, and supertitles,” said producing artistic director Jimmy Moore. “So we are communicating at any one point in two to three different ways.” The Public Theater has provided ASL nights since December 2015, said Robert Cardoza, founder of the Stage Hands sign language services company and assistant director of the production. But staging a play with a fully integrated deaf, hard-of-hearing and hearing cast is new, Moore said. Deaf actors, such as Missy Smith in the dual roles of Belle and Mrs. Fred, react to light cues rather than sound cues and interpret between sign language words and spoken words, which in some cases differ slightly. For example, she’ll sign “I finally accept you” while speaking “I at long last embrace you.” Moore said the play is just the beginning of such inclusive performances. “It is a really great first step for the Public to learn what it means to be more accessible to the deaf and hard-of-hearing communities in San Antonio.” Growing awareness While a 2016 Kronkosky Charitable Foundation report found San Antonio to be “an exceptional hub for autism services,” with a wide range of professionals who provide autism care, the report concluded that demand for services far outstrips supply. But Patty Vela, chief development and outreach officer of the nonprofit Autism Community Network , said accommodations such as sensory-friendly events are on the rise. Experts at the nonprofit including occupational therapist Adrienne Gaither have helped such local organizations as Morgan’s Wonderland and Methodist Hospital establish programs to welcome individuals with autism and other developmental disabilities. The Tobin Center’s sensory-friendly performances date back to the very start of its programming, Stephenson said, shaped in part by the help of the Autism Theater Initiative in New York and Kulture City, a nationwide organization that provides sensory-inclusive certification to venues interested in accommodating people with sensory needs. The DoSeum children’s museum researched Kulture City initiatives for its new Beyond Limits program, said program educator Shauna Brookins. Sensory-friendly Beyond Limits events take place after regular hours to limit crowds, with lighting dimmed and sound volumes lowered. Brookins plans four such events per year, with the next taking place Wednesday evening with a Winter Wonderland theme. The museum also provides sensory-friendly accommodations every day, Brookins said, with sensory backpacks that include headphones, sunglasses, fidget toys and a museum map that locates quiet zones including the Calm Corner, an enclosed, sound-dampened retreat room. Both Brookins and Vela encouraged parents to observe their children to detect areas of sensitivity, whether they shy away from loud sounds or avoid particular stimuli, or, as Ha said of her son, may simply need to get up frequently to walk around and burn off excess energy. “We’re first-time parents, we’re trying to learn how to meet him with where he’s at,” Ha said. And Rodriguez said she’s heartened by the growing awareness that many, if not most people, have some form of sensory sensitivity and that institutions are responding. She has auditory sensory sensitivities and visual impairments that make her sensitive to light, she said, and sometimes needs to walk away from stimuli to recuperate. “So for someone like me … coming into spaces like the [sensory-friendly] Zoo Lights [display] where the lights weren’t so overwhelming for me, it was much easier for me to enjoy that environment,” Rodriguez said. The next Tobin Center sensory-friendly performance is Pilobolus Is a Fungus , March 19 at noon. See the whole article with pictures here . Previous Next

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< Back Anna Paola Smith, LCSW Licensed Clinical Social Worker Anna Paola Smith attended The University of Texas at Austin where she received her BA in Psychology and her Masters degree in Social Work. She has had the opportunity to work with children and families in the school, hospital, and clinical settings. Anna Paola's interests lie in family system and how the development of one child may impact the entire family unit. After living in Austin for 6 years, she relocated to San Antonio with her husband, Daniel. During her free time she enjoys creating recipes for her Paleo-based Instagram account, exploring the culinary scene in San Antonio with her family and friends, and living an active, healthy lifestyle. anna.paola@acn-sa.org (210) 435-1000 ext. 2010

< Back Spurs coach Gregg Popovich's support of autism acceptance reached global audience Tom Orsborn Apr 20, 2024 Spurs fan Martin Krøger, although 5,300 miles away in Denmark, had the sense coach Gregg Popovich's comments after a recent game in support of autism acceptance were made for his benefit. "If I could ever thank that man in person, this would be at the top of my list of things to thank him for," Krøger, a 50-year-old IT consultant, wrote on X, formerly Twitter. Krøger was diagnosed with Asperger's syndrome, a form of autism, when he was 48. "Forget the wins and the titles, that's just a game," Krøger wrote after hearing the NBA's all-time winningest coach's message of inclusion. "Seeing people for who they are and using your platform for doing good works, that's what really matters in the end." After wearing Nike custom Air Force 1 sneakers sporting a colorful infinity symbol with the words "Inclusion" and "To The Max" during a home game against Philadelphia on April 7 as part of the NBA's efforts to promote Autism Acceptance Month, Popovich spoke about the need to value those living on the autism spectrum. "We're just trying to bring some awareness to autism," he said. "I didn't even realize it was that prolific. I guess it's one out of every 37 children is diagnosed with autism, and that's a lot more than I think I knew. But it's a malady I think is misunderstood in some ways. It's like it's a 'bad thing' or that person is the 'other'. Now, that person is just different and really deserves our attention, our support and a realization they have other advantages, or advantages is the wrong word, but other traits that make them special. "So giving them love and support is really important and hopefully people will understand they need to be included. They can't be put aside as 'others'. They need to be included and supported." Autism advocates applauded the empathy and support shown by Popovich, 75. "It’s absolutely wonderful," said Tiffany Fresher, CEO of the Autism Community Network, a San Antonio nonprofit that works to "maximize the potential of children with autism by providing early diagnosis for those with limited access and educating and empowering the community to support them," according to its website. Autism spectrum disorder, or ASD, is a condition that ranges from mild to serious and is typically marked by social awkwardness, communication difficulties, repetitive behaviors and other problems. According to the Centers for Disease Control and Protection, autism affects one in every 36 children and one in 45 adults in the United States. Popovich and other NBA coaches embraced Autism Acceptance Month in response to an effort by Utah Jazz assistant coach Scott Morrison and his wife Susanne to raise awareness after their son Max was diagnosed with autism in 2022. "Before the season started, we just knew we wanted to do something to try and help or contribute," Morrison told USA Today. "And we had the idea to just maybe tap into the handful of coaches I knew just to see who would be interested in wearing the shoes as a way to highlight autism." Gregg Popovich and other coaches across the league wore custom Nike Air Force 1 shoes for a pair of games as part of an NBA-wide initiative to raise awareness for autism. The sneakers were signed by the coaches and auctioned off to raise funds for the To The Max Foundation, a nonprofit founded by the Morrisons to support autistic individuals and their families. Dr. Melissa D. Svoboda, director of the autism program at the Children’s Hospital of San Antonio, said it was "amazing" to hear Popovich draw attention to autism. But she said his comments also reinforced her belief the public still needs more education about autism. "When I first started my training, I told people I was going to work with autistic children, and they were like, 'Artistic? Like they draw?' " Svoboda said. "Nobody knew what autistic meant. Thank goodness, fast forward, fifteen, twenty years later and now it is so much more common, but you still have people like coach Popovich saying, 'Oh, I didn’t know it was this common.' "It’s so common that there is this real big movement toward neurodiversity, which is really what he is getting at, that maybe (autism) is a spectrum of normal, especially with some of these higher functioning individuals. Some people may call them quirky, but they have a place here. There are some amazing things they do that other people don’t have as a skill set. And it really is about inclusion and support to make sure everybody, no matter ability or disability, finds a placed and a meaning in what they want to do." The Autism Community Network works toward fulfilling that goal by helping families gain a better understanding of autism. "When somebody in the family has autism, everyone is dealing with autism in their family," Fresher said. "We are trying to teach them their child’s strengths and how to communicate with their child and how to reduce stress in their family...to help the family better communicate with the child, so the child’s stress is reduced as well." Svoboda is hopeful that during Autism Acceptance Month people "on the more severe end of the spectrum who require a lot of support" aren't forgotten. "A lot of this neurodiversity movement is centered on people at the higher end of the spectrum, but I think we have to make sure we are including everybody on every part of the spectrum," she said. Krøger, the Danish Spurs fan who praised Popovich's comments on X, was also diagnosed with attention deficit hyperactivity disorder (ADHD), along with Asperger's syndrome. Asperger's syndrome is a condition on the autism spectrum with generally higher functioning. People with the condition may be socially awkward and have an all-absorbing interest in specific topics, according to the website for the Nationwide Children's Hospital. "It was a life-changing experience, suddenly realizing I could now let go of all of the guilt and anger I'd carried around with me since childhood," Krøger wrote to the Express-News in a direct message on X about his diagnosis. "I came to accept that while I was in fact different from most of the people around me, that did not mean there was something wrong with me. I was simply that: different." Krøger wote that being "very open" about his diagnosis with family, friends and colleagues has been a freeing experience. "People deserved to know how much hard work goes into just living with someone like me or into living with children with the same difficulties," he wrote. " It's been very heartening to see the reactions my wife and I have gotten from people we know. Still, I'm able to mask my neurodivergence somewhat when I'm out in the world and so I still get to hear how people talk about 'everyone wants a diagnosis for their kid these days' and questioning the validity of the difficulties facing us. "That's why Pop's comments moved me. Being the son of a no-nonsense coach in that same gruff but caring mold, it's probably no surprise I already hold him in high regard. It just means so incredibly much to people like me that a man of his stature takes the opportunity to educate folks on something as simple but meaningful as remembering to include us, even though we're a bit different. "His reminder that we need love and support really hit home for me, knowing that while I'm fortunate in that regard, I know too many who weren't as lucky as me." To see the article on the San Antonio Express News website visit https://www.expressnews.com/sports/spurs/article/popovich-s-support-autism-acceptance-reached-19396018.php . Previous Next